Bibliography - Coproduction learning community
Introduction to coproduction
Batalden M, Batalden P, Margolis P, et al. Coproduction of healthcare service. BMJ Quality & Safety. 2015.
Alford J. “Citizen Co-production of Public Services” in Klassen T, Cepiku D, Lah TJ. (eds) The Routledge Handbook of Global Public Policy and Administration. 2017; Routledge: New York, NY.
FD Vennik et al. Co-production in healthcare: Rhetoric and practice. International Review of Administrative Sciences. 2016.
Coleman K, Austin BT, Brach C, Wagner EH. Evidence of the Chronic Care Model in the new millennium. Health Affairs. 2009 Jan-Feb 28(1):75-85.
Hibbard JH, Greene J. What the evidence shows about patient activation: Better health outcomes and care experiences; fewer data on costs. Health Affairs. 2013 Feb 32(2):207-214.
McMillan SS, Kendall E, Sav A, King MA, Whitty JA, Kelly F, Wheeler AJ. Patient-centered approaches to health care: A systematic review of randomized controlled trials. Med Care Res Rev. 2013 Dec 70(6):567-96.
Hauser K, Koerfer A, Kuhr K, Albus C, Herzig S, Matthes J. Outcome-relevant effects of shared decision-making. Dtsch Arztebl Int. 2015 Oct 112(40):665-71.
Vargo SL, Lusch RF.(eds) The Sage Handbook of Service Dominant Logic.2019; Sage: Thousand Oaks, CA.
Brandsen T, Steen T, Verschuere B. Co-production and Co-creation: Engaging Citizens in Public Services. 2018; Routledge:New York.
Greenhalgh T. How to Implement Evidence-based Healthcare. 2018; Wiley Blackwell: Hoboken, NJ.
Szescilo D. “Exploring the potential of co-production in health care. Review of European Practices and Outcomes.” (paper prepared for EGPA Annual Conference 2016). http://www.academia.edu/28087989/Exploring_the_potential_of_co-production_in_health_care._Review_of_European_practices_and_outcomes
Ethical dimensions of co-production and co-design
Ewert B, Evers A. An ambiguous concept: On the meanings of co-production for health care users and user organizations? Voluntas (2014) 25:425–442.
NEF. Co-production in mental health: A literature review. http://s.bsd.net/nefoundation/default/page/-/publications/Co-Production_web.pdf
Williams BN, Kang SC, Johnson J. Co-contamination as the dark side of co-production: A review of case studies and challenges with resulting implications for public management. 2015 International Research Society for Public Management Conference [conference paper]. http://irspm2015.com/index.php/irspm/IRSPM2015/paper/viewFile/985/400
Gorski D. When science- and evidence-based guidelines conflict with patient wishes: What’s a doc to do? Science-based medicine. 2016. https://sciencebasedmedicine.org/when-evidence-based-guidelines-conflict-with-patient-wishes/
Sandsman L. Adherence, shared decision-making and patient autonomy. Medicine, Health Care and Philosophy. 2012. https://link.springer.com/article/10.1007/s11019-011-9336-x
Methods of co-design
Robert G. Patients and staff as codesigners of healthcare services. BMJ 2015. http://www.bmj.com/content/350/bmj.g7714
McCreary L. Kaiser Permanente’s Innovation on the Front Lines. Harvard Business Review. 2010. https://hbr.org/2010/09/kaiser-permanentes-innovation-on-the-front-lines
Boyd H, McKernon S, Old A. Health Service Co-Design: Working with Patients to Improve Healthcare Services – Guide and Toolkit. 2010 Waltemata District Health Board. http://www.healthcodesign.org.nz/tools/TOOLKIT_WEB_DOWNLOAD.pdf
NHS Institute for Innovation and Improvement. Experience-based design: Using patient and staff experience to design better healthcare services. 2010. https://www.hqsc.govt.nz/assets/Consumer-Engagement/Partners-in-Care-Resource-page/Experience-Based-design-Concepts-and-Case-Studies-January-2010.pdf
Donetto S, Tsianakas V, Robert G. Using experience-based co-design to improve the quality of healthcare: mapping where we are now and establishing future directions. London: King’s College London. 2014. https://www.kcl.ac.uk/nursing/research/nnru/publications/Reports/EBCD-Where-are-we-now-Report.pdf
Boehmer KR, Gionfriddo MR, Rodriguez-Gutierrez R, et al. Patient capacity and constraints in the
experience of chronic disease: a qualitative systematic review and thematic synthesis. BMC Family Practice (2016) 17:127
Boehmer KR, Shippee ND, Beebe TJ, Montori VM. Pursuing minimally disruptive medicine: disruption from illness and health care-related demands is correlated with patient capacity. J. Clin. Epidemiol. 74 (2016) 227-236.
Measurement in co-design and coproduction
Phillips NM, Street M, Haesler E. A systematic review of reliable and valid tools for the measurement of patient participation in healthcare. BMJ Quality & Safety. 2015. http://qualitysafety.bmj.com/content/early/2015/09/28/bmjqs-2015-004357
NEF. Co-production self-assessment framework. Link.
Elwyn G. et al. Measurement of shared decision-making: A review of instruments. ZEFQ 2011. http://zefq-journal.com/article/S1865-9217(11)00121-8/pdf
Goodrich J. Designing services in partnership with patients. Nursing Times 2016. https://www.nursingtimes.net/clinical-archive/patient-safety/designing-services-in-partnership-with-patients/7004429.article
Wagle N. Implementing patient-reported outcome measures. NEJM Catalyst. 2017. http://catalyst.nejm.org/implementing-proms-patient-reported-outcome-measures/
Translating reseach into improvement projects
Associates for Process Improvement. The Improvement Guide. Chapter 6: Developing a Change. Pp. 109-137.
Moore SK et al. Patients as collaborators: Using focus groups and feedback sessions to develop an interactive, web-based self-management intervention for chronic pain. Pan Med. 2013.
Fucile B, Bridge E, Duliban C, Law MP. Experience-based co-design: A method for patient and family engagement min system-level quality improvement. Patient Experience Journal. 2017.
Scaling coproduction as an organizational capability
Gilardi S, Guglielmetti C, Marsilio M, Sorrentino M. Co-production in healthcare: Moving patient engagement towards a managerial approach. [book chapter].
Morton M, Paice E. Co-Production at the Strategic Level: Co-Designing an Integrated Care System with Lay Partners in North West London, England. Int. J. Integ. Care. 2016. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5015527/
National Development Team for Inclusion. Embedding co-production in mental health: A framework for strategic leads, commissioners and managers. https://www.ndti.org.uk/uploads/files/MH_Coproduction_framework.pdf
Patient-Centered Primary Care Collaborative & Planetree. 6 steps to creating a culture of person and family engagement in health care. April 2017. https://www.pcpcc.org/sites/default/files/PFE%20Culture%20Change%20Toolkit%20042017.pdf
Slade M. Implementing shared decision making in routine mental health care. World Psychiatry. 2017.
Armstrong S, Arterburn D. Creating a culture to promote shared decision making at Group Health. National Academy of Medicine, 2013. http://nam.edu/wp-content/uploads/2015/06/SharedDecisions.pdf
Riel J, Martin RL. Creating Great Choices: A Leader’s Guide to Integrative Thinking. 2017; Harvard Business Review Press:Boston, MA.
Ballatt J, Campling P. Intelligent Kindness: Reforming the Culture of Healthcare. 2011; RCPsych:London, UK.
Phillips A, Taylor B. On Kindness. 2009; Farrar, Straus and Giroux: New York, NY.
Countering resistance to change
Steen T, Van Erijk C. Why co-produce: analyzing citizens’ perceptions on co-planning engagement in health care services. 2014; J. Pub. Mgmt. Res 16:358-382.
Bridge E, Law MP, Narushima M. Using patient value statements to develop a culture of patient-centered care: A case study of an Ontario, Canada hospital. Patient Experience Journal 2016.
Content updated 2019-10-15